22 Sep Information about therapies
Get information in the forum. Ask questions about amyloidosis, mucosal cancer, and other Rare Diseases. Experts will answer your questions in detail.click here to go to the Forum
Center of Expertise
Our center of expertise provides an effective network together with universities, patient organizations, research institutions, social networks and social organizations, as well as pharmaceutical companies. Please, contact us.
Orphanet is the official portal for Rare Diseases and orphan drugs. Get informed and search through the large database. You will find a lot of information…http://www.orpha.net/consor/cgi-bin/index.php?lng=EN
Eurordis and patient organizations
Please, contact Eurordis, the patient-driven alliance of patients’ organizations and individuals for rare diseases. They will help you… www.eurordis.org